Scottish Huntington's Association
Scottish Huntington's Association

Charity registered in Scotland SC010985

Scottish Huntington’s Association (SHA) is a Scottish charity that was established by families living with Huntington’s disease (HD) in the late 1980s. Experiencing directly the dearth of services available to them, the organisation pursued the goal of setting up specialist family support services and this ultimately blossomed into the development of an extensive network of specialist services.


Closed vacancies
This vacancy has now closed

Huntington's Disease Specialist (Lothian Service)

  • Full time
  • £29,508 – £32,645
  • Western General Hospital, Edinburgh
  • Closing 9th February 2020

We have a new vacancy for a Huntington’s Disease Specialist. An exciting opportunity to join our existing team and growing Scottish charity which offers specialist assessment, advice, information and support to families affected by Huntington’s disease (HD) and professionals involved in their care.

Previous experience of working with Huntington’s disease is preferred but not essential; most of our staff have a background in mental health, physical disability, social work, neurology or palliative care. We will provide you with all the specialist knowledge you need. What we are looking for is someone who is enthusiastic and motivated and can have a positive impact on the quality of life of people living with the disease. You will also need to be able to work autonomously.

SHA invites applications from enthusiastic professionals to work autonomously in this challenging and innovative post. Candidates require a qualification in Nursing (1st level), Social Work, Occupational Therapy or other relevant field. A substantial level of post-basic experience is desirable. Community-based practice knowledge is essential. A clean current driving licence and use of a car is essential.

Shortlist
This vacancy has now closed

Huntington's Disease Specialist

  • Part time
  • £29,508 – £32,645 pro-rata
  • Irvine
  • Closing 23rd February 2020

The HDS will be a member of the Ayrshire Huntington’s disease specialist service based in the Douglas Grant Rehabilitation Centre, Ayrshire Central Hospital, Irvine, whilst also being part of the wider SHA multidisciplinary teams. The service covers all geographical areas within Ayrshire & Arran. Operational areas of the service include the direct provision of support, advice, assessment and care management planning for individuals and their families whose lives are impacted by HD, promotion of a self-help model amongst families and increasing awareness of Huntington’s disease (HD) and raising awareness of the HD Care Framework ensuring equality of care across Lothian.

The primary function is to facilitate quality care for those with HD and their families through specialist assessment, planning, coordination, implementation and signposting to appropriate professionals/ agencies. The post holder will also provide up to date HD training sessions and information regarding current clinical trials and research to all H&SCP’s, other professional and voluntary bodies and family members. Caseloads can be complex and emotionally challenging but equally rewarding. In addition the HDS will work with the Senior HD Specialist and wider teams in supporting any new developments within the Ayrshire service and across the Adult Clinical Service.

Shortlist
This vacancy has now closed

Team Leaders (2 posts)

  • Part time
  • £37,384 – £39,217 pro-rata
  • Working from home or one of SHA’s service locations
  • Closing 24th February 2020

Join Scottish Huntington’s Association (SHA) and you will transform the lives of families living with Huntington’s disease (HD).

SHA is world-leading in its advocacy and support for the HD community. As a Team Leader, you will have a key role in strengthening service delivery by supporting experienced HD specialists working with families and individuals to create uniquely personalised packages of care.

Ideally, we seek one Team Leader based in the North of Scotland and one in the South. Applications are therefore invited from across Scotland.

You will be an experienced health or social care professional with substantial experience in a community setting. You will have experience in supporting adults with a long-term condition. Knowledge of Huntington’s disease is desirable, but not essential. You will hold a recognised Nursing Social Work or Allied Health Professional Qualification. You will a minimum of three years’ experience supporting, coaching and managing staff.

We seek applicants who can work in partnership with other agencies and influence improvements in the care and support of people with Huntington’s disease. You should also have an understanding of the strategic context of neurology in Scotland.

Funding for this post is provided by Scottish Huntington’s Association, a values-driven organisation founded by families for families.

All posts are subject to a Disclosure Scotland PVG or Police Act check

SHA is a registered Charity (SC010985) and is committed to promoting equal opportunities in employment

Shortlist
This vacancy has now closed

Top job! Chief Executive Officer

  • Full time
  • £55,000 – £58,000
  • National Office, Paisley
  • Closing 13th March 2020

A unique opportunity has arisen to join Scottish Huntington’s Association (SHA) and help transform the lives of families living with Huntington’s disease (HD).

As Chief Executive, you will work closely with the board of directors to lead in creating and driving the strategy that will enable the charity to continue to thrive, deliver and develop high quality services. You will ensure the financial, human resource and policy framework is in place to achieve this.

You will have the ability to capitalise on opportunities and meet the challenges of working across government and statutory agencies to ensure that families continue to receive the best care and access to emerging treatments and therapies.

You will have a professional management qualification or equivalent experience preferably in a community based health or social care setting.

We seek applicants who can create an open and transparent working culture, support and empower teams and build effective partnerships with a wide range of organisations and stakeholders.

Funding for this post is provided by Scottish Huntington’s Association, a values-driven organisation founded by families for families.

Shortlist
This vacancy has now closed

Huntington's Disease Specialist

  • Part time
  • £29,508 – £32,645 pro-rata
  • Clinical Genetics Centre, Ashgrove House Foresterhill, Aberdeen
  • Closing 23rd March 2020

Due to retirement we have a vacancy for a Huntington’s Disease Specialist post. An exciting opportunity to become part our existing Grampian team in a growing Scottish Charity which offers specialist assessment, one to one support, advice, and information to families impacted by Huntington’s Disease (HD) and all professionals involved in their care.

We are looking for someone who is enthusiastic, motivated and who will have a positive impact on the quality of life of families whose lives are impacted by HD. The successful candidate should have excellent working skills the ability to work autonomously using their own initiative this challenging and innovative post. Good listening, communication and interpersonal skills are essential, as are excellent time and caseload management skills. Previous experience of working with Huntington’s disease is preferred but not essential; most of our staff have a background in mental health, physical disability, social work, neurology or palliative care. We will provide you with all the specialist knowledge you need.

The Scottish Huntington’s Disease Association invites applications from professionals with a valid, current professional qualification in any of the specialities listed below

Nursing (1st level), Social Work, Occupational Therapy, Speech and Language or other relevant field.

A substantial level of post-basic experience is desirable. Community based practice knowledge and a clean current driving licence and use of a car is essential.

The successful candidate will be subject to an enhanced disclosure.

Shortlist
This vacancy has now closed

Huntington’s Disease Specialist

  • Part time
  • £29,508 – £32,645 pro-rata
  • SHA, Business First, Burnbrae Road, Linwood Industrial Estate, Paisley, PA3 3FP
  • Closing 19th March 2020

We have a vacancy for a Huntington’s Disease Specialist post. An exciting opportunity to become part our existing Glasgow & Clyde team in a growing Scottish Charity which offers specialist assessment, one to one support, advice, and information to families impacted by Huntington’s Disease (HD) and all professionals involved in their care.

We are looking for someone who is enthusiastic, motivated and who will have a positive impact on the quality of life of families whose lives are impacted by HD. The successful candidate should have excellent working skills the ability to work autonomously using their own initiative this challenging and innovative post. Good listening, communication and interpersonal skills are essential, as are excellent time and caseload management skills. Previous experience of working with Huntington’s disease is preferred but not essential; most of our staff have a background in mental health, physical disability, social work, neurology or palliative care. We will provide you with all the specialist knowledge you need.

The Scottish Huntington’s Disease Association invites applications from professionals with a valid, current professional qualification in any of the specialities listed below

  • Nursing (1st level), Social Work, Occupational Therapy, Speech and Language or other relevant field.

A substantial level of post-basic experience is desirable. Community based practice knowledge and a clean current driving licence and use of a car is essential.

The successful candidate will be subject to an enhanced disclosure.

Shortlist
This vacancy has now closed

Admin/Resource Worker

  • Part time
  • £17,676 – £18,909 pro-rata
  • SHA, Business First, Burnbrae Road, Linwood Industrial Estate, Paisley, PA3 3FP
  • Closing 19th March 2020

A unique opportunity has arisen to join Scottish Huntington’s Association (SHA) and help transform the lives of families living with Huntington’s disease (HD).

We are currently looking to recruit an Admin/Resource Worker on a 20 hour per week contract to provide administrative support to our Greater Glasgow & Clyde Huntington's Disease Service based in Business First, Burnbrae Road, Linwood. The post holder will be expected to provide administrative support to the Senior HD Specialist, and HD Specialists including the production of reports and the collation of information and resources as required by the service.

MAIN DUTIES AND RESPONSIBILITIES

To develop and maintain efficient administrative systems in support of the Glasgow & Clyde HD Specialist Service.

To assist SHA to promote awareness of the needs and challenges of HD families through the provision of information as guided by the SHDS.

To assist the SHDS and HDS to maintain accurate records and statistical data as required by the HD Specialist Service, using Windows-based computer systems including databases and spreadsheets.

To assist the SHDS and HDS to maintain accurate financial records as required by SHA.

To assist with the update of clinical activity and the input of clinical information to the SHA database as specified by the SHDS and HDS.

To assist in the organisation of local and national study days / training sessions. To assist with mailshots, audit and service satisfaction surveys.

To develop, in conjunction with the SHDS and HDS a, resource library of relevant, updated material relating to the HD client group.

To communicate appropriately with clients, professional staff and other relevant agencies.

This job description may be subject to review following discussion with the post holder and management of SHA.

The successful candidate will be subject to an enhanced disclosure.

Shortlist

Volunteering

Volunteer Fundraising Co-ordinator

Fundraising

28th January 2020

The Scottish Huntington’s Association (SHA) exists to tackle the inequalities in health and social care provision, ensure families are better connected to support and services and increase the capacity of other agencies through training and education. Fundraising Co-ordinator… Read more